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    Ethics of mobile phone surveys to monitor non-communicable disease risk factors in low- and middle-income countries: A global stakeholder survey

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    Author
    Ali, J.
    DiStefano, M.J.
    Coates, McCall, I.
    Date
    2019
    Journal
    Global Public Health
    Publisher
    Routledge
    Type
    Article
    
    Metadata
    Show full item record
    See at
    https://dx.doi.org/10.1080/17441692.2019.1566482
    Abstract
    Active public health surveillance has traditionally been carried out through face-to-face household surveys or contact with providers, which can be time and resource intensive. The increasing ubiquity of mobile phones and availability of phone survey platforms provide an opportunity to explore the use of mobile phone surveys (MPS) for active disease and risk factor surveillance, including for non-communicable diseases (NCDs). Scholars are increasingly examining the ethics implications of mobile health (mHealth), but few have focused on the ethics of mHealth in low- and middle-income countries (LMICs), and even fewer on mHealth for active surveillance. Given that little is known about ethics-related attitudes and practices of stakeholders invested in the conduct and oversight of mHealth in LMICs, we undertook a cross-sectional global stakeholder survey of ethics-related issues implicated by active observational MPS, with a contextual frame of monitoring NCD risk factors in LMICs. We analyse these findings with an organising focus on ethical issues that arise before, during and after conduct of an MPS including defining the activity; anticipating harms and benefits; obtaining consent; data ownership, access, and use; and ensuring sustainability. Finally, we present a set of empirical, conceptual, and normative considerations that arise from this analysis and merit further consideration. © 2019 The Author(s)
    Keyword
    Bioethics
    digital health
    mhealth
    public health
    surveillance
    Identifier to cite or link to this item
    https://www.scopus.com/inward/record.uri?eid=2-s2.0-85059961950&doi=10.1080%2f17441692.2019.1566482&partnerID=40&md5=a34a9169611f5d83d30ad9416197dec0; http://hdl.handle.net/10713/8638
    ae974a485f413a2113503eed53cd6c53
    10.1080/17441692.2019.1566482
    Scopus Count
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    UMB Open Access Articles 2019

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