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dc.contributor.authorKolarcik, Christi L.
dc.contributor.authorBledsoe, Marianna J.
dc.contributor.authorO'Leary, Timothy J.
dc.date.accessioned2022-09-13T12:53:01Z
dc.date.available2022-09-13T12:53:01Z
dc.date.issued2022-09-01
dc.identifier.urihttp://hdl.handle.net/10713/19725
dc.description.abstractAlthough issues associated with returning individual research results to study participants have been well explored, these issues have been less thoroughly investigated in vulnerable individuals and populations. Considerations regarding return of research results to these individuals and populations, including how best to ensure truly informed consent, how to minimize the risks and benefits of the return of research results, and how best to ensure justice may differ from those of the population at large. This article discusses the issues and challenges associated with the return of individual research results (such as genomic, proteomic, or other biomarker data) to potentially vulnerable individuals and populations, including those who may be vulnerable for cognitive, communicative, institutional, social, deferential, medical, economic, or social reasons. It explores factors that should be considered in the design, conduct, and oversight of ethically responsible research involving the return of research results to vulnerable individuals and populations and discuss recommendations for those engaged in this work.en_US
dc.description.urihttps://doi.org/10.1016/j.ajpath.2022.06.004en_US
dc.language.isoen_USen_US
dc.publisherElsevieren_US
dc.relation.ispartofAmerican Journal of Pathologyen_US
dc.titleReturning Individual Research Results to Vulnerable Individualsen_US
dc.typeArticleen_US
dc.identifier.doi10.1016/j.ajpath.2022.06.004
dc.source.journaltitleAmerican Journal of Pathology
dc.source.volume192
dc.source.issue9
dc.source.beginpage1218
dc.source.endpage1229


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