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    Health Equity in Pediatric Drug Development: Translating Aspiration into Operation.

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    Author
    Folayan, Morenike Oluwatoyin
    Conway, Magda
    Russo, Carolyn
    Diniz, Nilza
    Jafta, Lungile P
    Sam-Agudu, Nadia A
    Bernays, Sarah
    Santana, Victor M
    Epps, Carla
    Turner, Mark A
    Date
    2022-05-20
    Journal
    Therapeutic Innovation & Regulatory Science
    Publisher
    Springer Nature
    Type
    Article
    
    Metadata
    Show full item record
    See at
    https://doi.org/10.1007/s43441-022-00410-3
    https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/35596108/
    Abstract
    The concept of health equity-the attainment of the highest possible level of health for all members of society-requires equitable access to all aspects of healthcare, including pediatric drug development. However, many communities are under-represented in pediatric drug development programs. Barriers to participation include geographic, economic, racial/ethnic bias, legal, cultural, linguistic, and other factors. While there is no "one size fits all" approach to addressing these barriers, community engagement and collaboration is recognized by the Centers for Disease Control, the World Health Organization, and other global health organizations as a cornerstone for building a more equitable healthcare system. In this article, we will present case studies of stakeholder and community engagement in clinical research for rare diseases and other areas of healthcare, as examples of strategies and practices for actively involving under-represented communities and fostering their participation in pediatric drug development programs. These studies may serve as templates for facilitating equity in pediatric drug development from aspiration into operation.
    Rights/Terms
    © 2022. The Author(s).
    Keyword
    Access
    Adolescent
    Child
    Drug development
    Engagement
    Health equity
    Stakeholders
    Identifier to cite or link to this item
    http://hdl.handle.net/10713/18991
    ae974a485f413a2113503eed53cd6c53
    10.1007/s43441-022-00410-3
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