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dc.contributor.authorXu, Eric J
dc.contributor.authorBoyer, LaPricia Lewis
dc.contributor.authorJaar, Bernard G
dc.contributor.authorEphraim, Patti L
dc.contributor.authorGimenez, Luis
dc.contributor.authorCheng, Alan
dc.contributor.authorChrispin, Jonathan
dc.contributor.authorWeir, Matthew R
dc.contributor.authorRaj, Dominic
dc.contributor.authorGuallar, Eliseo
dc.contributor.authorShafi, Tariq
dc.date.accessioned2021-06-03T13:48:07Z
dc.date.available2021-06-03T13:48:07Z
dc.date.issued2021-05-27
dc.identifier.urihttp://hdl.handle.net/10713/15910
dc.description.abstractBackground: Patients receiving dialysis face a high risk of cardiovascular disease, arrhythmia and sudden cardiac death. Few patients, however, are aware of this risk. Implantable cardiac monitors are currently available for clinical use and can continuously monitor cardiac rhythms without the need for transvenous leads. Our goal was to gauge patients' and family members' perceptions of these risks and to identify their concerns about cardiac monitors. Methods: Two 90-minute focus groups were conducted: one with patients receiving in-center hemodialysis and one with their family members. Trained moderators assessed: (1) knowledge of cardiovascular disease; (2) cardiovascular disease risk in dialysis; (3) risk of death due to cardiovascular disease; (4) best ways to convey this risk to patients/families; and (5) concerns about cardiac monitors. The sessions were audiotaped, transcribed, and independently analyzed by two reviewers to identify core themes. Emblematic quotations were chosen to illustrate the final themes. Results: Nine adult patients and three family members participated. Patients felt education was inadequate and had little knowledge of arrhythmias. Patients'/families' concerns regarding cardiac monitors were related to adverse effects, the notification process, and cosmetic effects. Patients/families felt that nephrologists, not dialysis staff, would be the best source for education. Conclusions: The preliminary data from this small study population suggest that patients/families are not well aware of the high risk of arrhythmia and sudden cardiac death in dialysis. Further investigation is required to gauge this awareness among patients/families and to assess their impressions of implantable cardiac monitors for arrhythmia detection and management.en_US
dc.description.urihttps://doi.org/10.1186/s12882-021-02403-0en_US
dc.language.isoenen_US
dc.publisherSpringer Natureen_US
dc.relation.ispartofBMC Nephrologyen_US
dc.subjectArrhythmiaen_US
dc.subjectDialysisen_US
dc.subjectFamily perspectivesen_US
dc.subjectFocus groupsen_US
dc.subjectPatient perspectivesen_US
dc.subjectSudden cardiac deathen_US
dc.titlePatients' and family members' perspectives on arrhythmias and sudden death in dialysis: the HeartLink focus groups pilot studyen_US
dc.typeArticleen_US
dc.identifier.doi10.1186/s12882-021-02403-0
dc.identifier.pmid34044764
dc.source.volume22
dc.source.issue1
dc.source.beginpage199
dc.source.endpage
dc.source.countryUnited States
dc.source.countryEngland


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