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dc.contributor.authorAbdelwadoud, Moaz
dc.contributor.authorEftekhari, Sanaz
dc.contributor.authorJaffee, Hannah
dc.contributor.authorCarver, Melanie
dc.contributor.authorMattingly, T Joseph
dc.date.accessioned2021-03-16T14:53:11Z
dc.date.available2021-03-16T14:53:11Z
dc.date.issued2021-02-05
dc.identifier.urihttp://hdl.handle.net/10713/14982
dc.description.abstractBackground: Food allergy is a major health problem that significantly impacts quality of life (QoL). There is growing focus to evaluate food allergy-related QoL and treatment options’ value beyond the clinical effectiveness perspective by engaging patients and caregivers. We aimed to identify and prioritize outcomes important to food allergy parents of children and patients allergic to milk, egg, and/or peanut, to guide comparative effectiveness research (CER) that focuses on evaluating food allergy treatment decisions. Methods: We conducted a modified 3-round Delphi study to identify and derive consensus on priority treatment outcomes for parents of children and adult patients with diagnosed allergies to at least one of three major allergenic foods (milk, egg, and peanut) from across the United States. Results: Round 1 yielded 44 statements for round 2, and 39 statements reached the agreement level for round 3 ranking. Statements were organized under 4 sections: 1) food allergy problems, 2) treatment experiences, 3) important treatment outcomes, and 4) value of different treatment options. Conclusion: Food allergy parents and patients face several social, psychological, medical, healthcare, financial, food selection, and awareness challenges. The areas of consensus on important treatment outcomes revealed shared priority for reducing the risk of potentially fatal allergic reactions and having reliable treatments. The most valued treatment options reflect hope for permanent cure and fear of serious allergic reactions. © 2021 The Authors.en_US
dc.description.urihttps://doi.org/10.1111/pai.13464en_US
dc.language.isoenen_US
dc.publisherWiley-Blackwellen_US
dc.relation.ispartofPediatric Allergy and Immunology : Official Publication of the European Society of Pediatric Allergy and Immunologyen_US
dc.rights© 2021 The Authors. Pediatric Allergy and Immunology published by European Academy of Allergy and Clinical Immunology and John Wiley & Sons Ltd.en_US
dc.subjectcaregiversen_US
dc.subjectcomparative effectiveness researchen_US
dc.subjectdelphi techniqueen_US
dc.subjectfood allergyen_US
dc.subjectfood hypersensitivityen_US
dc.subjectquality of lifeen_US
dc.titleFood allergy treatment value: Child caregiver and patient perspectivesen_US
dc.typeArticleen_US
dc.identifier.doi10.1111/pai.13464
dc.identifier.pmid33544417
dc.source.countryEngland


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