Food allergy treatment value: Child caregiver and patient perspectives
JournalPediatric Allergy and Immunology : Official Publication of the European Society of Pediatric Allergy and Immunology
MetadataShow full item record
AbstractBackground: Food allergy is a major health problem that significantly impacts quality of life (QoL). There is growing focus to evaluate food allergy-related QoL and treatment options’ value beyond the clinical effectiveness perspective by engaging patients and caregivers. We aimed to identify and prioritize outcomes important to food allergy parents of children and patients allergic to milk, egg, and/or peanut, to guide comparative effectiveness research (CER) that focuses on evaluating food allergy treatment decisions. Methods: We conducted a modified 3-round Delphi study to identify and derive consensus on priority treatment outcomes for parents of children and adult patients with diagnosed allergies to at least one of three major allergenic foods (milk, egg, and peanut) from across the United States. Results: Round 1 yielded 44 statements for round 2, and 39 statements reached the agreement level for round 3 ranking. Statements were organized under 4 sections: 1) food allergy problems, 2) treatment experiences, 3) important treatment outcomes, and 4) value of different treatment options. Conclusion: Food allergy parents and patients face several social, psychological, medical, healthcare, financial, food selection, and awareness challenges. The areas of consensus on important treatment outcomes revealed shared priority for reducing the risk of potentially fatal allergic reactions and having reliable treatments. The most valued treatment options reflect hope for permanent cure and fear of serious allergic reactions. © 2021 The Authors.
Rights/Terms© 2021 The Authors. Pediatric Allergy and Immunology published by European Academy of Allergy and Clinical Immunology and John Wiley & Sons Ltd.
comparative effectiveness research
quality of life
Identifier to cite or link to this itemhttp://hdl.handle.net/10713/14982
- What affects quality of life among caregivers of food-allergic children?
- Authors: Howe L, Franxman T, Teich E, Greenhawt M
- Issue date: 2014 Jul
- Oral immunotherapy for peanut allergy: The pro argument.
- Authors: Chinthrajah RS, Cao S, Dunham T, Sampath V, Chandra S, Chen M, Sindher S, Nadeau K
- Issue date: 2020 Aug
- Treatment of allergic reactions and quality of life among caregivers of food-allergic children.
- Authors: Ward CE, Greenhawt MJ
- Issue date: 2015 Apr
- Differences in Caregiver Food Allergy Quality of Life Between Tertiary Care, Specialty Clinic, and Caregiver-Reported Food Allergic Populations.
- Authors: Ward C, Greenhawt M
- Issue date: 2016 Mar-Apr
- Milk allergy most burdensome in multi-food allergic children.
- Authors: Abrams EM, Kim H, Gerdts J, Protudjer JLP
- Issue date: 2020 Oct