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    Food allergy treatment value: Child caregiver and patient perspectives

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    Author
    Abdelwadoud, Moaz
    Eftekhari, Sanaz
    Jaffee, Hannah
    Carver, Melanie
    Mattingly, T Joseph
    Date
    2021-02-05
    Journal
    Pediatric Allergy and Immunology : Official Publication of the European Society of Pediatric Allergy and Immunology
    Publisher
    Wiley-Blackwell
    Type
    Article
    
    Metadata
    Show full item record
    See at
    https://doi.org/10.1111/pai.13464
    Abstract
    Background: Food allergy is a major health problem that significantly impacts quality of life (QoL). There is growing focus to evaluate food allergy-related QoL and treatment options’ value beyond the clinical effectiveness perspective by engaging patients and caregivers. We aimed to identify and prioritize outcomes important to food allergy parents of children and patients allergic to milk, egg, and/or peanut, to guide comparative effectiveness research (CER) that focuses on evaluating food allergy treatment decisions. Methods: We conducted a modified 3-round Delphi study to identify and derive consensus on priority treatment outcomes for parents of children and adult patients with diagnosed allergies to at least one of three major allergenic foods (milk, egg, and peanut) from across the United States. Results: Round 1 yielded 44 statements for round 2, and 39 statements reached the agreement level for round 3 ranking. Statements were organized under 4 sections: 1) food allergy problems, 2) treatment experiences, 3) important treatment outcomes, and 4) value of different treatment options. Conclusion: Food allergy parents and patients face several social, psychological, medical, healthcare, financial, food selection, and awareness challenges. The areas of consensus on important treatment outcomes revealed shared priority for reducing the risk of potentially fatal allergic reactions and having reliable treatments. The most valued treatment options reflect hope for permanent cure and fear of serious allergic reactions. © 2021 The Authors.
    Rights/Terms
    © 2021 The Authors. Pediatric Allergy and Immunology published by European Academy of Allergy and Clinical Immunology and John Wiley & Sons Ltd.
    Keyword
    caregivers
    comparative effectiveness research
    delphi technique
    food allergy
    food hypersensitivity
    quality of life
    Identifier to cite or link to this item
    http://hdl.handle.net/10713/14982
    ae974a485f413a2113503eed53cd6c53
    10.1111/pai.13464
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