• Login
    View Item 
    •   UMB Digital Archive
    • UMB Open Access Articles
    • UMB Open Access Articles
    • View Item
    •   UMB Digital Archive
    • UMB Open Access Articles
    • UMB Open Access Articles
    • View Item
    JavaScript is disabled for your browser. Some features of this site may not work without it.

    Browse

    All of UMB Digital ArchiveCommunitiesPublication DateAuthorsTitlesSubjectsThis CollectionPublication DateAuthorsTitlesSubjects

    My Account

    LoginRegister

    Statistics

    Display statistics

    Development and Usability Evaluation of a Facebook-Based Intervention Program for Childhood Cancer Patients: Mixed Methods Study

    • CSV
    • RefMan
    • EndNote
    • BibTex
    • RefWorks
    Author
    Park, Bu Kyung
    Kim, Ji Yoon
    Rogers, Valerie E
    Date
    2020-07-28
    Journal
    Journal of Medical Internet Research
    Publisher
    JMIR
    Type
    Article
    
    Metadata
    Show full item record
    See at
    https://doi.org/10.2196/18779
    Abstract
    Background: Childhood cancers previously considered to be incurable now have 5-year survival rates up to 84%. Nevertheless, these patients remain at risk of morbidity and mortality from therapy-related complications. Thus, patient education and self-management strategies for promoting a healthy lifestyle are of tantamount importance for improving short- and long-term health outcomes. A Facebook-based “Healthy Teens for Soaam” (a Korean term for childhood cancers) program was developed to help improve knowledge and self-management practices of teens with cancer related to their disease and treatment. Objective: The two-fold purpose of this usability study was (1) to describe the process of developing an 8-week Facebook-based intervention program for teens with cancer, and (2) to evaluate its usability to refine the program. Methods: Multiple phases and methods were employed to develop and evaluate the usability of the program. Study phases included: (1) needs assessment through focus group interviews and qualitative content analysis, (2) development of module content, (3) expert review and feedback on module content, (4) Facebook-based program development, (5) usability evaluation by heuristic evaluation, (6) usability evaluation by targeted end-user testing, and (7) modification and final version of the program. Usability of the final version was confirmed through feedback loops of these phases. Results: Based on 6 focus group discussion sessions, it was determined that teens with cancer were interested in seeing stories of successful childhood cancer cases and self-management after discharge, and preferred multimedia content over text. Therefore, each Facebook module was redesigned to include multimedia materials such as relevant video clips tailored for teens. Usability assessed by heuristic evaluation and user testing revealed several critical usability issues, which were then revised. Potential end users tested the final program and perceived it to be usable and useful for teens with cancer. Conclusions: To our knowledge, “Healthy Teens for Soaam” is the first Facebook-based intervention program for teens with cancer. We actively worked with current childhood cancer patients and survivors to develop and improve this program, achieved good usability, and met the expressed needs and preferences of target end users. This 8-week Facebook-based educational program for teens with cancer, developed as the first step of an upcoming intervention study, will be useful for improving knowledge and self-management strategies of teens.
    Rights/Terms
    ©Bu Kyung Park, Ji Yoon Kim, Valerie E Rogers. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 28.07.2020.
    Keyword
    Facebook
    childhood cancer
    pediatric cancer patients
    social network site
    usability
    Identifier to cite or link to this item
    http://hdl.handle.net/10713/13494
    ae974a485f413a2113503eed53cd6c53
    10.2196/18779
    Scopus Count
    Collections
    UMB Open Access Articles

    entitlement

    Related articles

    • A Facebook-Based Obesity Prevention Program for Korean American Adolescents: Usability Evaluation.
    • Authors: Park BK, Nahm ES, Rogers VE, Choi M, Friedmann E, Wilson M, Koru G
    • Issue date: 2017 Jan-Feb
    • Usability testing of an online self-management program for adolescents with juvenile idiopathic arthritis.
    • Authors: Stinson J, McGrath P, Hodnett E, Feldman B, Duffy C, Huber A, Tucker L, Hetherington R, Tse S, Spiegel L, Campillo S, Gill N, White M
    • Issue date: 2010 Jul 29
    • Development of a Teen-Friendly Health Education Program on Facebook: Lessons Learned.
    • Authors: Park BK, Nahm ES, Rogers VE
    • Issue date: 2016 May-Jun
    • Development and formative evaluation of a web-based self-management exercise and diet intervention program with tailored motivation and action planning for cancer survivors.
    • Authors: Lee MK, Park HA, Yun YH, Chang YJ
    • Issue date: 2013 Feb 13
    • Development of a Self-management and Peer-Mentoring Intervention to Improve Transition Readiness Among Young Adult Survivors of Pediatric Cancer: Formative Qualitative Research Study.
    • Authors: Viola AS, Levonyan-Radloff K, Masterson M, Manne SL, Hudson SV, Devine KA
    • Issue date: 2022 Aug 3
    DSpace software (copyright © 2002 - 2023)  DuraSpace
    Quick Guide | Policies | Contact Us | UMB Health Sciences & Human Services Library
    Open Repository is a service operated by 
    Atmire NV
     

    Export search results

    The export option will allow you to export the current search results of the entered query to a file. Different formats are available for download. To export the items, click on the button corresponding with the preferred download format.

    By default, clicking on the export buttons will result in a download of the allowed maximum amount of items.

    To select a subset of the search results, click "Selective Export" button and make a selection of the items you want to export. The amount of items that can be exported at once is similarly restricted as the full export.

    After making a selection, click one of the export format buttons. The amount of items that will be exported is indicated in the bubble next to export format.