• Login
    View Item 
    •   UMB Digital Archive
    • UMB Open Access Articles
    • UMB Open Access Articles 2017
    • View Item
    •   UMB Digital Archive
    • UMB Open Access Articles
    • UMB Open Access Articles 2017
    • View Item
    JavaScript is disabled for your browser. Some features of this site may not work without it.

    Browse

    All of UMB Digital ArchiveCommunitiesPublication DateAuthorsTitlesSubjectsThis CollectionPublication DateAuthorsTitlesSubjects

    My Account

    LoginRegister

    Statistics

    Display statistics

    Early assessment of the 10-step patient engagement framework for patient-centred outcomes research studies: The first three steps

    • CSV
    • RefMan
    • EndNote
    • BibTex
    • RefWorks
    Author
    Sofolahan-Oladeinde, Y.
    Newhouse, R.P.
    Lavallee, D.C.
    Date
    2017
    Journal
    Family Practice
    Publisher
    Oxford University Press
    Type
    Article
    
    Metadata
    Show full item record
    See at
    https://doi.org/10.1093/fampra/cmx013
    Abstract
    Background. A key principle of patient-centred outcomes research (PCOR) is the engagement of patients and other stakeholders in the research process, but the evidence is still emerging on the impact patient engagement has on the research process. A 10-step framework has been developed to provide methodological guidance for patient engagement throughout the research process. However, the utility of the framework for patient engagement has not been tested in actual research studies. Objective. To describe researcher's overall experiences with engaging patients at the beginning of their PCOR research process. Methods. Twelve in-depth interviews were conducted face-to-face and by telephone with PCOR researchers between November 2014 and January 2015 at an Academic Health Center in the eastern USA. All data were audiotaped and transcribed, and NVivo 10 software was used for data analysis. Results. Four major themes emerged (i) the importance of patient engagement and how it provides 'a perspective you can't get unless you talk to the patient'; (ii) the impact of patient engagement; (iii) challenges and barriers of engagement; and (iv) the realities of patient engagement. Conclusions. Researchers' views illustrate the need to re-evaluate patient engagement in PCOR based on current realities. Given the many challenges to engagement that researchers encounter, it may be more productive to redefine the process of patient engagement so that the issues researchers now face are taken into account in future funding announcements, engagement rubrics and methodology frameworks developed.
    Keyword
    Doctor-patient relationship
    Patient engagement
    Patient-centred outcomes research
    Qualitative research
    Stakeholder engagement
    Identifier to cite or link to this item
    https://www.scopus.com/inward/record.uri?eid=2-s2.0-85027183595&doi=10.1093%2ffampra%2fcmx013&partnerID=40&md5=1b9e8fdba7898e59729ad234ed90fb55; http://hdl.handle.net/10713/11330
    ae974a485f413a2113503eed53cd6c53
    10.1093/fampra/cmx013
    Scopus Count
    Collections
    UMB Open Access Articles 2017

    entitlement

    Related articles

    • What do stakeholders expect from patient engagement: Are these expectations being met?
    • Authors: Boudes M, Robinson P, Bertelsen N, Brooke N, Hoos A, Boutin M, Geissler J, Sargeant I
    • Issue date: 2018 Dec
    • Authors: Cottrell E, Whitlock E, Kato E, Uhl S, Belinson S, Chang C, Hoomans T, Meltzer D, Noorani H, Robinson K, Schoelles K, Motu'apuaka M, Anderson J, Paynter R, Guise JM
    • Issue date: 2014 Mar
    • How are PCORI-funded researchers engaging patients in research and what are the ethical implications?
    • Authors: Ellis LE, Kass NE
    • Issue date: 2017 Jan-Mar
    • Qualitative Exploration of Engaging Patients as Advisors in a Program of Evidence Synthesis: Cobuilding the Science to Enhance Impact.
    • Authors: Gierisch JM, Hughes JM, Williams JW Jr, Gordon AM, Goldstein KM
    • Issue date: 2019 Oct
    • The PCORI Engagement Rubric: Promising Practices for Partnering in Research.
    • Authors: Sheridan S, Schrandt S, Forsythe L, Hilliard TS, Paez KA, Advisory Panel on Patient Engagement (2013 inaugural panel).
    • Issue date: 2017 Mar

    Related items

    Showing items related by title, author, creator and subject.

    • Thumbnail

      PATIENTS Day 2019: What Motivates People with Substance Use Disorders to Pursue Treatment? A Patient-Centered Approach to Understanding Patient Experiences and Patient-Provider Interactions

      Gressler, Laura E.; Natafgi, Nabil; DeForge, Bruce R.; Robinson-Shaneman, Barbarajean; Welsh, Christopher; Shaya, Fadia T. (2019-05-31)
    • Thumbnail

      PATIENTS Day 2019: Training for Cardiologists and their Patients about Patient-Centered Outcomes Research (PCOR)

      Cooke, Catherine E.; Burroughs, Angela; Mullins, C. Daniel; Perfetto, Eleanor M. (2019-05-31)
    • Thumbnail

      Healthcare Provider Communication with Young Adults: Patient-Centered Communication, Patient Satisfaction, Patient Trust, Social Support, Self-Care Skills, and Emotional Well-Being

      Nichols, Helen M.; Sacco, Paul; 0000-0002-6782-0869 (2018)
      Patient-centered communication is critical to the delivery of quality healthcare services. Although numerous health outcomes have been connected to patient-provider communication, there is limited research that has explored the processes and pathways between communication and health. Research among young adults (ages 26-39 years) is even more scarce, despite findings that health communication does vary with age. This study used data from the 2014 Health Interview National Trends Survey to (1) test a scale of seven items measuring patient-centered communication among young adults age 26 to 39 and (2) explore the relationship between patient-centered communication, patient trust, patient satisfaction, social support, self-care skills, and emotional well-being among young adults age 26 to 39. Exploratory and confirmatory factor analyses were conducted and results showed that a one-factor model of patient-centered communication among young adults fit the data well. In the final regression model, income, history of depression diagnosis, patient-centered communication, patient trust, social support, and patient self-efficacy (self-care skills) were all significantly related to emotional well-being. Post-hoc analyses showed that self-efficacy and patient trust modify the association between general health and emotional well-being. Among respondents who reported poor overall health, increases in self-efficacy and trust in their provider are associated with corresponding improvement in their predicted emotional well-being. This is in contrast to respondents who reported excellent overall health, for whom an improvements in self-efficacy and trust did not have the same effect on predicted emotional well-being. There was a significant interaction between depression and self-efficacy, as respondents who reported being diagnosed with depression showed a stronger relationship between self-efficacy and greater predicted well-being. Post-hoc analyses also showed significant interactions between patient-centered communication, satisfaction, and social support. Respondents who reported lower levels of PCC, showed decreased predicted emotional well-being as their satisfaction and perceived social support increased. These findings suggest the need to explore the means through which communication can impact emotional well-being, specifically among young adults who are in poor health or have a history of depression. Future research should also include longitudinal studies, in order to determine causality and directionality among constructs.
    DSpace software (copyright © 2002 - 2021)  DuraSpace
    Quick Guide | Policies | Contact Us | UMB Health Sciences & Human Services Library
    Open Repository is a service operated by 
    Atmire NV
     

    Export search results

    The export option will allow you to export the current search results of the entered query to a file. Different formats are available for download. To export the items, click on the button corresponding with the preferred download format.

    By default, clicking on the export buttons will result in a download of the allowed maximum amount of items.

    To select a subset of the search results, click "Selective Export" button and make a selection of the items you want to export. The amount of items that can be exported at once is similarly restricted as the full export.

    After making a selection, click one of the export format buttons. The amount of items that will be exported is indicated in the bubble next to export format.