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dc.contributor.authorArmstrong, M.J.
dc.contributor.authorMullins, C.D.
dc.contributor.authorGronseth, G.S.
dc.date.accessioned2019-10-08T19:43:51Z
dc.date.available2019-10-08T19:43:51Z
dc.date.issued2017
dc.identifier.urihttps://www.scopus.com/inward/record.uri?eid=2-s2.0-85015952792&doi=10.1371%2fjournal.pone.0174329&partnerID=40&md5=261fcfcf60e06e4634c8c25bd7fb65e2
dc.identifier.urihttp://hdl.handle.net/10713/11107
dc.description.abstractBackground Patient and consumer engagement in clinical practice guideline development is internationally advocated, but limited research explores mechanisms for successful engagement. Objective To investigate the perspectives of potential patient/consumer guideline representatives on topics pertaining to engagement including guideline development group composition and barriers to and facilitators of engagement. Setting and participants Participants were guideline-naïve volunteers for programs designed to link community members to academic research with diverse ages, gender, race, and degrees of experience interacting with health care professionals. Methods Three focus groups and one key informant interview were conducted and analyzed using a qualitative descriptive approach. Results Participants recommended small, diverse guideline development groups engaging multiple patient/consumer stakeholders with no prior relationships with each other or professional panel members. No consensus was achieved on the ideal balance of patient/consumer and professional stakeholders. Pre-meeting reading/training and an identified contact person were described as keys to successful early engagement; skilled facilitators, understandable speech and language, and established mechanisms for soliciting patient opinions were suggested to enhance engagement at meetings. Conclusions Most suggestions for effective patient/consumer engagement in guidelines require forethought and planning but little additional expense, making these strategies easily accessible to guideline developers desiring to achieve more meaningful patient and consumer engagement. Copyright 2017 Armstrong et al.en_US
dc.description.sponsorshipMJA is supported by an Agency for Healthcare Research and Quality (AHRQ) K08 career development award (K08HS24159) for research on patient engagement in clinical practice guidelines, through which this work was conducted.en_US
dc.description.urihttps://doi.org/10.1371/journal.pone.0174329en_US
dc.language.isoen_USen_US
dc.publisherPublic Library of Scienceen_US
dc.relation.ispartofPLoS ONE
dc.subject.meshPatient Participationen_US
dc.subject.meshPractice Guidelines as Topicen_US
dc.titleRecommendations for patient engagement in guideline development panels: A qualitative focus group study of guideline-naïve patientsen_US
dc.typeArticleen_US
dc.identifier.doi10.1371/journal.pone.0174329
dc.identifier.pmid28319201


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