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    Recommendations for patient engagement in guideline development panels: A qualitative focus group study of guideline-naïve patients

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    Author
    Armstrong, M.J.
    Mullins, C.D.
    Gronseth, G.S.
    Date
    2017
    Journal
    PLoS ONE
    Publisher
    Public Library of Science
    Type
    Article
    
    Metadata
    Show full item record
    See at
    https://doi.org/10.1371/journal.pone.0174329
    Abstract
    Background Patient and consumer engagement in clinical practice guideline development is internationally advocated, but limited research explores mechanisms for successful engagement. Objective To investigate the perspectives of potential patient/consumer guideline representatives on topics pertaining to engagement including guideline development group composition and barriers to and facilitators of engagement. Setting and participants Participants were guideline-naïve volunteers for programs designed to link community members to academic research with diverse ages, gender, race, and degrees of experience interacting with health care professionals. Methods Three focus groups and one key informant interview were conducted and analyzed using a qualitative descriptive approach. Results Participants recommended small, diverse guideline development groups engaging multiple patient/consumer stakeholders with no prior relationships with each other or professional panel members. No consensus was achieved on the ideal balance of patient/consumer and professional stakeholders. Pre-meeting reading/training and an identified contact person were described as keys to successful early engagement; skilled facilitators, understandable speech and language, and established mechanisms for soliciting patient opinions were suggested to enhance engagement at meetings. Conclusions Most suggestions for effective patient/consumer engagement in guidelines require forethought and planning but little additional expense, making these strategies easily accessible to guideline developers desiring to achieve more meaningful patient and consumer engagement. Copyright 2017 Armstrong et al.
    Sponsors
    MJA is supported by an Agency for Healthcare Research and Quality (AHRQ) K08 career development award (K08HS24159) for research on patient engagement in clinical practice guidelines, through which this work was conducted.
    Keyword
    Patient Participation
    Practice Guidelines as Topic
    Identifier to cite or link to this item
    https://www.scopus.com/inward/record.uri?eid=2-s2.0-85015952792&doi=10.1371%2fjournal.pone.0174329&partnerID=40&md5=261fcfcf60e06e4634c8c25bd7fb65e2; http://hdl.handle.net/10713/11107
    ae974a485f413a2113503eed53cd6c53
    10.1371/journal.pone.0174329
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    UMB Open Access Articles 2017

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