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dc.contributor.authorDavies, B.M.
dc.contributor.authorKhan, D.Z.
dc.contributor.authorMowforth, O.D.
dc.date.accessioned2019-09-13T16:42:03Z
dc.date.available2019-09-13T16:42:03Z
dc.date.issued2019
dc.identifier.urihttps://www.scopus.com/inward/record.uri?eid=2-s2.0-85065786852&doi=10.1177%2f2192568219832855&partnerID=40&md5=da26b6ec3e1d855f6870a835befa93a6
dc.identifier.urihttp://hdl.handle.net/10713/10741
dc.description.abstractStudy Design: Mixed-method consensus process. Objectives: Degenerative cervical myelopathy (DCM) is a common and disabling condition that arises when mechanical stress damages the spinal cord as a result of degenerative changes in the surrounding spinal structures. RECODE-DCM (REsearch Objectives and Common Data Elements for Degenerative Cervical Myelopathy) aims to improve efficient use of health care resources within the field of DCM by using a multi-stakeholder partnership to define the DCM research priorities, to develop a minimum dataset for DCM clinical studies, and confirm a definition of DCM. Methods: This requires a multi-stakeholder partnership and multiple parallel consensus development processes. It will be conducted via 4 phases, adhering to the guidance set out by the COMET (Core Outcomes in Effectiveness Trials) and JLA (James Lind Alliance) initiatives. Phase 1 will consist of preliminary work to inform online Delphi processes (Phase 2) and a consensus meeting (Phase 3). Following the findings of the consensus meeting, a synthesis of relevant measurement instruments will be compiled and assessed as per the COSMIN (Consensus-based Standards for the Selection of Health Measurement Instruments) criteria, to allow recommendations to be made on how to measure agreed data points. Phase 4 will monitor and promote the use of eventual recommendations. Conclusions: RECODE-DCM sets out to establish for the first time an index term, minimum dataset, and research priorities together. Our aim is to reduce waste of health care resources in the future by using patient priorities to inform the scope of future DCM research activities. The consistent use of a standard dataset in DCM clinical studies, audit, and clinical surveillance will facilitate pooled analysis of future data and, ultimately, a deeper understanding of DCM. Copyright The Author(s) 2019.en_US
dc.description.urihttps://doi.org/10.1177/2192568219832855en_US
dc.language.isoen-USen_US
dc.publisherSAGE Publications Ltden_US
dc.relation.ispartofGlobal Spine Journal
dc.subjectauditen_US
dc.subjectcervicalen_US
dc.subjectcervical stenosisen_US
dc.subjectcommon data elements (CDE)en_US
dc.subjectconsensusen_US
dc.subjectCore Outcomes in Effectiveness Trials (COMET)en_US
dc.subjectdataseten_US
dc.subjectDelphien_US
dc.subjectdisc herniationen_US
dc.subjectJames Lind Alliance (JLA)en_US
dc.subjectmyelopathyen_US
dc.subjectOPLLen_US
dc.subjectoutcomeen_US
dc.subjectprotocolen_US
dc.subjectresearch prioritiesen_US
dc.subjectspondylosisen_US
dc.subjectsurveillanceen_US
dc.titleRE-CODE DCM (REsearch Objectives and Common Data Elements for Degenerative Cervical Myelopathy): A Consensus Process to Improve Research Efficiency in DCM, Through Establishment of a Standardized Dataset for Clinical Research and the Definition of the Resen_US
dc.typeArticleen_US
dc.identifier.doi10.1177/2192568219832855


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