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    Patients' early engagement in research proposal development (PEER-PD): Patients guiding the proposal writing

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    Author
    Natafgi, N.
    Tafari, A.T.
    Chauhan, C.
    Date
    2019
    Journal
    Journal of Comparative Effectiveness Research
    Publisher
    Future Medicine Ltd.
    Type
    Article
    
    Metadata
    Show full item record
    See at
    https://doi.org/10.2217/cer-2018-0129
    Abstract
    Patient engagement often starts after research funding is secured with little or no involvement of patients in the proposal development phase. This paper compares three levels of patient engagement and describes patients' early engagement in research proposal development process and its contemporary relevance to clinical and translational research. Authentic patient engagement is illustrated using an example of an ongoing pragmatic clinical trial. The paper also addresses key patient considerations and questions that have an impact on the proposal development. The final section presents strategies to overcome challenges to the patients' early engagement in research proposal development approach from the perspectives of both patients and researchers. Although the examples are from comparative effectiveness research, strategies discussed can be applied to all clinical and translational research.
    Sponsors
    This project was funded by the Agency for Healthcare Research and Quality (AHRQ) (grant number R24HS022135) and Patient-Centered Outcomes Research Institute (PCORI) (award number PCS-1403-12804).
    Keyword
    clinical and translational research
    comparative effectiveness research
    patient involvement
    patient participation
    proposal writing
    research design
    research development
    Identifier to cite or link to this item
    https://www.scopus.com/inward/record.uri?eid=2-s2.0-85064219468&doi=10.2217%2fcer-2018-0129&partnerID=40&md5=9bb36bf03e16131ee98ca5536f5c7f56; http://hdl.handle.net/10713/10710
    ae974a485f413a2113503eed53cd6c53
    10.2217/cer-2018-0129
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